Only those who can never do that again, this year or any other, truly understand how special that is. Their lives have been forever changed by the loss of their loved one to bicuspid aortic valve disease My thoughts go to them, in many states and around the world. How much they would give for just one more moment together.
Flowers for the Holidays - An Impulse Buy
It was an impulse buy. While shopping in November I saw these square boxes with gorgeous flowers pictured on the outside. Amaryllis. I remembered my Mom having this plant around the holidays one year. It had seemed rather exotic to me. I do not have her green thumb and had no idea how much she coddled and coaxed it to produce those huge, gorgeous flowers. But, how I would love to enjoy those beautiful blooms once again!
Maybe it would do better in a different location, with a bit more December sun. I moved it, watched it, and tried to keep the soil moist without drowning it! It was alive, that was clear, but I doubted there would be anything special happening any time soon.
Wonders Over Night
Just Spending Time Together
And so, we have these holidays now, special, uninterrupted moments together. I find myself clinging to them, wanting to slow the passing of time. Soon they will be over.
The Amaryllis has so beautifully rewarded my rather doubtful efforts, producing beautiful flowers for the new year. In this new year, check ups await him once again. How is his prosthetic aortic valve doing? It needs to be checked soon. Last year, we learned it is not holding up as well as we would like. How much has it changed? His mitral valve tends to leak, but has remained unchanged for several years. He is to have a follow up with an eye specialist, too. We need to make sure nothing can rob him of his vision. Oh, the delicate tissue, the possible complications, for someone born with BAV.
This new year holds heart and aortic check ups for so many. Some face serious decisions about when and where to have surgery. Too often, good answers are hard to find.There are no labels, no names, other than bicuspid aortic valve or thoracic aortic disease, for many with complex issues through out their bodies. Quite simply, too little is known, too little understood.
I cannot bear to think about those so apparently healthy, so talented and active, who are unaware that they are in danger from their BAV or aneurysm. We need ways to find them before tragedy strikes.
May the new year be a fresh start in search of answers.
These are my thoughts on the eve of the New Year. And then, the New Year arrives!
|January 1, 2016|
Two fully open flowers, two buds
|January 2, 2016|
|The Third Bud Begins to Open|
January 2, 2016
Watching it change and bloom, I find this amazing plant has reminded me of the BAV experience. After long periods of quietness, BAV may change so quickly, so dramatically. Doctors call it "latent". One interesting definition of that word is "hidden" or "dormant". For many years, BAV may not express itself. Then, often very quickly, there is important change. A valve needs surgery, an aneurysm is dangerously bulging. My husband's experience has been like that.
It is so hard for those who know, who must watch and wait. Like my Amaryllis bulb, it seems nothing is likely to happen. But then it does. Often then, things move quickly. It is so easy to be in denial.
Can I see the beauty, find the wonder, as life unfolds?
|January 2, 2016|
|Another Flower Stem Has Appeared|
Hope for the Future
January 1, 2016
We can have those check ups, ask our questions, get multiple opinions. We can make decisions.
Along the way, I will look for the beauty in each day.
So much awaits us all. May the beauty in the promise of help and healing sustain us. Let us focus on hope.
With all best wishes in this new year,
- Arlys Velebir